NCCC Family Advisory Board

The Newborn Critical Care Center established its Family Advisory Board (FAB) in January 2006. As parents who have lived through the experience of having a child in a neonatal intensive care unit (NICU), FAB members provide personal support to families with babies in the NCCC. They also work to educate the health care team and improve care by sharing the insights they gained while their children were critically ill newborns.

Board Members

The Family Advisory Board is comprised of parents who have had one or more children in the Newborn Critical Care Center (NCCC). The Board first convened in January 2006, partnering with NCCC staff to improve care and communication to families.

Duties and Responsibilities

The Family Advisory Board is a formal link between families and staff of the Newborn Critical Care Center (NCCC). The Board's mission is to improve service to families while they are in the NCCC and after they go home by providing input on NCCC policies and resources and contributing their expertise on specific issues that affect families.

Getting Involved

Family Advisory Board

Individuals who have had a family member in the Newborn Critical Care Center (NCCC) may become active members of the NCCC Family Advisory Board (FAB). In addition to shaping policies and protocols and helping the NCCC health care team improve care, Board members are actively engaged in the planning of NCCC Alumni Network activities. Monthly meetings are held on the 4th Thursday of every month from 6 p.m. to 8 p.m. in the NCCC.

NCCC Alumni Network

Individuals who have had a family member in the Newborn Critical Care Center (NCCC) may also become members of the NCCC Alumni Network. By doing so, they will have the opportunity to:

• Be linked to other alumni families by email/listserv;
• Provide input on NCCC policies and resources that affect families;
• Be informed of and help with NCCC related events and activities for families (NCCC Reunion, special Mother’s Day, Father’s Day and holiday events, family support luncheons, etc.);
• Provide expertise on specific issues (teaching new nurses and physicians about parent’s perspective, helping in nursery design and program development, etc.);
• Volunteer to work with families in the NCCC; and
• Be informed of fundraising events that will benefit families of NCCC babies.

If you would like more information about either of these opportunities, please contact Tara Bristol, March of Dimes NCCC Family Support Specialist, at (919) 843-0552.